The Things She Missed

Today is January 6, the Feast of the Epiphany, the last day of Christmas. It’s also the 26th anniversary of my mother’s death.

And it’s the day my little girl got a letter from none other than Supreme Court Justice Ruth Bader Ginsburg.

I have written before, so many times, about my mother’s death. Writing is a way to track my grief, to understand how it has changed me, and how grief itself changes over time.

Grief never dies, but it does change. And as I have grown older, it has taken on a different focus: motherhood has taught my that my mother’s loss was greater than mine.

I lost so much time with her. For years, my life felt like a collection of moments that I didn’t get to share with her. Those moments still come, but now when they come I also feel the pain of the other side of loss. Her side.

Because she lost so much more. She lost time with me and time with my brother. She lost time with the grandchildren she never got to meet. She didn’t get to be there to see me graduate high school, or college, or graduate school. Or to see me get married, or to welcome the births of my babies. She missed milestones and all the little moments in between.

When your parent dies at the age of 42, there is a pretty good chance you will, at some point, think about yourself also dying at a young age. Especially once you are in the same phase of life your parent was in at the time of their death.

I’m in that phase now, and this is what I know: I can’t imagine any loss greater than losing time with my children.

Over the last two weeks, people all over the world have come to know a slice of my beautiful girl’s character and her beautifully unique outlook on life.

But my mother, the person my daughter is named after, missed it all.

I’ve been here, and as far as I know I will still be here for decades to come, watching my girls grow, experiencing the milestones and the moments in between. That is my greatest joy.

Today, my greatest sadness is for my mom, who has missed so much.

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What Grief Has Taught Me

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It’s January 6th again, the day that I dread. I can hardly remember a time when I didn’t dread this day, and I think I will continue to dread it as long as my memory is intact. I’ve been dreading it more than usual this year, because January 6, 2016 is kind of a big deal.

Today marks the 25th anniversary of my mother’s death from breast cancer. I don’t know why this number seems so significant. There is something about a quarter of a century that feels substantial.

And I don’t know why measuring the time that has passed is so important to me. It’s something I just do, automatically. I can say with certainty, though, that these 25 years have changed me. Looking back to 1991 from 2016 feels like looking from one world to another. To me, it is a different world. I’ve grown up.

I’ve grown up, and I’ve grown in understanding. The roles that cancer and loss have played in my life have never been far from my mind. I’m a thinker (and an over-thinker), and I’ve never stopped thinking about the parts of my life that have so fundamentally shaped the person I’ve become.

So, small though my pool of knowledge might be, I do know this:

Cancer is a family disease.

I’ve never had cancer, but cancer is a part of me.

My mother was first diagnosed when I was four. I was young, but I was very aware of the fear gripping my family. I used to have this nightmare, over and over and over, so often that 32 years later I can still remember it in near-perfect detail. I was in my parents’ bedroom – pale blue walls, bed covered with a white, tufted chenille bedspread. My mother was standing at the foot of the bed packing a suitcase. My father was in the corner of the room crying. I was squeezed between the bed and the wall, watching, hidden. Behind my mother a bear hovered — it wanted to take her away. I knew my mother was scared but didn’t want to show it, and I knew that my father was crying because he was helpless.  This scene would repeat itself in a loop, and it scared me stiff.

Chronic illness — when it carries with it the potential of a death sentence — is terrifying for the person fighting it. It is also terrifying for those who love and need that person. During the long seven years of my mother’s illness, in my heart I was fighting alongside her. The time that has passed since her death has done nothing to diminish my sense of having battled and lost to cancer.

Sharing death with someone is an intimate, profoundly affecting act and everyone should do it once.

My mother died at Christmas. Technically, she died on the last day of Christmas, the Feast of the Epiphany. But really, her death began on the 26th when she fell into a coma that only broke when her pain became uncontrollable.

I was there the whole time. I was with her when she lost consciousness. I heard her when she emerged only to moan in pain. I learned what dying breaths sound like and I stood beside her as those breaths ebbed to a stop. I could almost see her soul depart her body.

Four years ago, when I was nearly 37 weeks pregnant with my second daughter, I sat in another room with another person I loved as cancer took his life away too. This time, it was my uncle – one of the best humans I’ve ever known – who was making his surrender. With my aunt and my cousins, I held his hand through a death that was not peaceful.

The memories of my mother and my uncle dying are among my most painful. But I also treasure them. There was an inexplicable beauty in those moments, a sense of connectedness and love. I’m better because of them.

Grief grows as one body.

When you first experience grief – not just great sadness, grief – it creates a sort of nerve in you with the cause of your grief at its core. And once that nerve exists within you, you can’t experience loss without it being touched.

Shortly after my mother died, my grandfather died, also of cancer. I grieved my grandfather, whom I loved deeply, but his death renewed my grief for my mother. As death took more of the people I loved, an uncle, my grandmothers, an uncle again, I grieved each individually and all of them together.

When my second uncle died four years ago, I felt the loss of everyone who had gone before him. But oddly enough, the grief I felt was also a kind of resurrection. Grieving them together somehow brought them back to me individually. For a time they were all with me again.

People die, but grief doesn’t.

Grief is a gut punch like no other. It shatters you absolutely. People tell you that it goes away with time, but it doesn’t.

And as much as you wish in the early days that it will go away, that it will release you and let you go back to being the person you were before it took over your life, you end up not wanting it to go away.

Time makes living with your grief more bearable, but it also takes you further away from the person you have lost. Eventually, grief becomes the strongest connection you have with them.

In 25 years, the world has changed. I’ve changed. And with every year that passes, it’s as though time has taken my mother further away from me. I don’t feel her presence anymore. The memories I have of her are pitifully few. I take them out like treasures now, cherishing them, guarding them, but lacking a sense of their relevance in my daily life.

And now that the grief of missing her in every moment has lessened, a new grief has taken its place – the grief of not missing her in every moment. It’s a quieter grief — and more bearable — but it’s grief all the same.

After 25 years, what I know above all things is that grief never dies.

Mom

 

 

Grieving the Almost

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A Facebook friend of mine once shared a post on grieving the almost. It was a beautiful and thoughtful essay on the paradoxical idea that we have the ability to miss something that never really existed, except in our perceptions or in our imaginations.

On the surface, grieving the almost seems impossible. How can you feel the pain of the loss of something that was never yours to lose? It shouldn’t be possible – God knows we have enough grief in this world from the losses of what we can feel with our own five senses. And if reality were just what we can see and touch and hear, it wouldn’t be possible.

But of course it’s possible. Because we all know that just because something happens in our heads, it doesn’t mean it isn’t real. We can grieve the love we thought we felt, but didn’t. We can grieve the marriage that was never really a marriage. We can grieve the job we never got, the dream that was never fulfilled, the potential we never reached. We can grieve the child we never conceived and we can grieve the one we lost but never met.

These days, it’s the grief of that final almost which has been foremost on my mind. I’m posting this in October, the month dedicated to bringing awareness to pregnancy and infant loss – and social media is ensuring that memories of my own loss remain on the edges of my thoughts.

I can say from experience that anyone who has lost a cherished pregnancy, no matter how early, knows what it means to grieve the almost.

A parent is able to love – overwhelmingly – the baby whose proof of life lies only in the faintest of pink lines. A parent can see the child of her heart in the sprout-like form and nubby limbs of an 8-week fetus. A parent can feel the downy hair she never nuzzled; she can know the soft weight that never warmed her chest.

A parent who has lost a pregnancy has grieved – and will always grieve – the almost.

I’m writing this post not so much in the name of awareness, but in remembrance. Because I think the hardest part of pregnancy loss is the knowledge that we (or someone we loved) once carried within her the potential for a life that will not only never be lived, but which will never be known.

And so, this post is for all of the almost babies, the shadow children, who exist in the hearts of so many mothers and fathers.  Your presence is felt in a world you never saw, because you changed those who loved you without ever knowing you. We remember you. We miss you. We grieve for the world that will never know you.

We Are All They Need

Today is Janurary 6, my mother’s day. It became “my” mother’s day 23 years ago when my own mother, after a nearly eight-year battle, lost her life to breast cancer and when I became aware of how vitally important a mother’s presence is in the lives of her children.

For many years, whenever January 6th arrived, I thought about my own losses. A first, I missed her with every nerve; I felt flayed and exposed to a host of things that were beyond my understanding. Gradually, my piercing grief was replaced by a longing that was no less intense, because it contained the realization that with each passing year I was separated even further from her.

But now that I have children of my own, when January 6th rolls around I find myself thinking less about my own losses and more about what my mother lost when she died.

She was so beautiful.

She was so beautiful.

Parenthood is a future-thinking endeavor. When we first breathe in the newness of our just-born child, we look forward, far forward, to decades of moments with that brand-new baby. Yes, we marvel at their smallness, their freshness, their perfection. We revel in the tiny yet immense gift we have been given. But we also envision what that baby will be like as a child, and as a teenager, and as an adult. We see them on birthdays, on holidays, at graduations and weddings. We see their children.

We plan to be with them until they are grown, and to experience life with them after they have reached their potential as adults. We don’t plan for our relationship with them to end when they are children.

When my mom died, she didn’t just lose her own life. She lost her life with her children. For her, my life and my brother’s life, intertwined as they were with her own, ended when we were eleven and six.

I can’t even imagine how painful it must have been for her, when she finally accepted that the end was near, to know that she was about to lose her future with us. That she would miss all of the moments of our lives, big and small, for the rest of our lives. That she would never know us as adults, or meet the people who would become important to us as we matured. That she would never, ever, hold a grandchild in her arms.

As her daughter, and as the mother of my own children, it breaks my heart to know that this face…

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…and this face

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…are wholly unknown to her.

When she knew that she was dying, she also had to know that she was letting go of a million moments with her children. That the past was all she would ever have with us. She must have experienced the kind of pain that pray I never have to face.

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This is not going to turn into one of those “enjoy every moment with your child because you never know how many you have” posts. I could go there, but I’m not a hypocrite. I would wager large sums of money that, when my children are grown and gone, I absolutely will not be longing to re-experience the prickly-hot feeling of panic spiked with shame that comes over you when your five-year-old is publicly behaving like a spoiled toddler, while your toddler is running in circles like an untrained dog smelling distinctly of eau de poo. There are many moments that I won’t miss.

I’m not even saying that we moms (and dads!) should be doing anything differently. If anything, I am saying we should all do less, or at least that we should worry less about what we should be doing. Because if I have learned one thing after 23 years of being without my mother, I can tell you that what I missed, what I craved, was her. Her presence. The knowledge that the world contained her.

I didn’t need any extras. I didn’t need perfection. I would have preferred to have had her healthy, but to have had her at all was a blessing and, as I have learned, a luxury. To have had her, just as she was, was enough.

And if just having her was enough, then it follows that just having us, their parents, is enough for our own children. The fact that we are in their lives, that we are actively loving them, is enough. Our flaws and imperfections and mistakes do nothing to lessen the impact of our mere presence. Isn’t that a freeing thought?

What I am saying is that the sum of moments that we have with our children is probably the best thing that we, or they, will ever have. And that if we are able to look forward to a future of these moments, when we and they are all present together in this world, then we are damned lucky.