Bath Time is Crazy Time

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There is something about warm, unchlorinated water in a porcelain tub that brings out my kids’ inner Kraken. I don’t know what it is.  Maybe the opportunity to be fully, freely nude releases inhibitions along with common sense. Maybe, like a lion tracking its prey, they can sense that a long day has weakened my defenses. Maybe they just really enjoy the thrill of saving their wildest antics for the one place in the house in which they could drown.

All I know is that bath time is crazy time.

My sweet little water monsters insist on bathing together. They are terrified of the shower, so they bathe exclusively in the tub. I let them, despite the havoc they wreak, because honestly you have to choose your battles.

They use this shared bath time as an opportunity to do things they can’t do anywhere else, like fight over whose side of the tub has more water, or who is stealing whose bubbles. They take advantage of the bathroom acoustics to practice their most blood-curdling, bone piercing screams, joining their voices into a wail like the death omen of a banshee.

I say things like, “don’t drink that! Why are you drinking that?! Bath water is butt water.” And “stop laughing at your sister drinking butt – I mean bath – water. It’s not funny. Seriously, it’s not funny.” Or, “God made our bodies beautiful but please let’s keep our private parts to ourselves.”

By the time they get out, I am done – but the bath time/bedtime marathon is not. They still need to get dried and into pajamas. And it is at this point, when I am at my feeblest, that my younger daughter unleashes the full power of her inner demon.

Released from the confines of the tub, she moves to the second phase of her bath time ritual: the escape. Yesterday, I turned my back on her for two seconds and she was gone. I followed her soggy footprints into her sister’s room, where I found her hiding behind the curtains, her little butt pressed up against the floor to ceiling window.

It’s a cat and mouse chase of Tom and Jerry proportions, and by the time I finally catch and clothe her, I am spent. I am nothing more than a shell of myself.

But then this happens.

Norah Sleeping

 

And I am overwhelmed with love and in awe of the fact that these little Krakens are mine.

 

What Grief Has Taught Me

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It’s January 6th again, the day that I dread. I can hardly remember a time when I didn’t dread this day, and I think I will continue to dread it as long as my memory is intact. I’ve been dreading it more than usual this year, because January 6, 2016 is kind of a big deal.

Today marks the 25th anniversary of my mother’s death from breast cancer. I don’t know why this number seems so significant. There is something about a quarter of a century that feels substantial.

And I don’t know why measuring the time that has passed is so important to me. It’s something I just do, automatically. I can say with certainty, though, that these 25 years have changed me. Looking back to 1991 from 2016 feels like looking from one world to another. To me, it is a different world. I’ve grown up.

I’ve grown up, and I’ve grown in understanding. The roles that cancer and loss have played in my life have never been far from my mind. I’m a thinker (and an over-thinker), and I’ve never stopped thinking about the parts of my life that have so fundamentally shaped the person I’ve become.

So, small though my pool of knowledge might be, I do know this:

Cancer is a family disease.

I’ve never had cancer, but cancer is a part of me.

My mother was first diagnosed when I was four. I was young, but I was very aware of the fear gripping my family. I used to have this nightmare, over and over and over, so often that 32 years later I can still remember it in near-perfect detail. I was in my parents’ bedroom – pale blue walls, bed covered with a white, tufted chenille bedspread. My mother was standing at the foot of the bed packing a suitcase. My father was in the corner of the room crying. I was squeezed between the bed and the wall, watching, hidden. Behind my mother a bear hovered — it wanted to take her away. I knew my mother was scared but didn’t want to show it, and I knew that my father was crying because he was helpless.  This scene would repeat itself in a loop, and it scared me stiff.

Chronic illness — when it carries with it the potential of a death sentence — is terrifying for the person fighting it. It is also terrifying for those who love and need that person. During the long seven years of my mother’s illness, in my heart I was fighting alongside her. The time that has passed since her death has done nothing to diminish my sense of having battled and lost to cancer.

Sharing death with someone is an intimate, profoundly affecting act and everyone should do it once.

My mother died at Christmas. Technically, she died on the last day of Christmas, the Feast of the Epiphany. But really, her death began on the 26th when she fell into a coma that only broke when her pain became uncontrollable.

I was there the whole time. I was with her when she lost consciousness. I heard her when she emerged only to moan in pain. I learned what dying breaths sound like and I stood beside her as those breaths ebbed to a stop. I could almost see her soul depart her body.

Four years ago, when I was nearly 37 weeks pregnant with my second daughter, I sat in another room with another person I loved as cancer took his life away too. This time, it was my uncle – one of the best humans I’ve ever known – who was making his surrender. With my aunt and my cousins, I held his hand through a death that was not peaceful.

The memories of my mother and my uncle dying are among my most painful. But I also treasure them. There was an inexplicable beauty in those moments, a sense of connectedness and love. I’m better because of them.

Grief grows as one body.

When you first experience grief – not just great sadness, grief – it creates a sort of nerve in you with the cause of your grief at its core. And once that nerve exists within you, you can’t experience loss without it being touched.

Shortly after my mother died, my grandfather died, also of cancer. I grieved my grandfather, whom I loved deeply, but his death renewed my grief for my mother. As death took more of the people I loved, an uncle, my grandmothers, an uncle again, I grieved each individually and all of them together.

When my second uncle died four years ago, I felt the loss of everyone who had gone before him. But oddly enough, the grief I felt was also a kind of resurrection. Grieving them together somehow brought them back to me individually. For a time they were all with me again.

People die, but grief doesn’t.

Grief is a gut punch like no other. It shatters you absolutely. People tell you that it goes away with time, but it doesn’t.

And as much as you wish in the early days that it will go away, that it will release you and let you go back to being the person you were before it took over your life, you end up not wanting it to go away.

Time makes living with your grief more bearable, but it also takes you further away from the person you have lost. Eventually, grief becomes the strongest connection you have with them.

In 25 years, the world has changed. I’ve changed. And with every year that passes, it’s as though time has taken my mother further away from me. I don’t feel her presence anymore. The memories I have of her are pitifully few. I take them out like treasures now, cherishing them, guarding them, but lacking a sense of their relevance in my daily life.

And now that the grief of missing her in every moment has lessened, a new grief has taken its place – the grief of not missing her in every moment. It’s a quieter grief — and more bearable — but it’s grief all the same.

After 25 years, what I know above all things is that grief never dies.

Mom

 

 

Grieving the Almost

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A Facebook friend of mine once shared a post on grieving the almost. It was a beautiful and thoughtful essay on the paradoxical idea that we have the ability to miss something that never really existed, except in our perceptions or in our imaginations.

On the surface, grieving the almost seems impossible. How can you feel the pain of the loss of something that was never yours to lose? It shouldn’t be possible – God knows we have enough grief in this world from the losses of what we can feel with our own five senses. And if reality were just what we can see and touch and hear, it wouldn’t be possible.

But of course it’s possible. Because we all know that just because something happens in our heads, it doesn’t mean it isn’t real. We can grieve the love we thought we felt, but didn’t. We can grieve the marriage that was never really a marriage. We can grieve the job we never got, the dream that was never fulfilled, the potential we never reached. We can grieve the child we never conceived and we can grieve the one we lost but never met.

These days, it’s the grief of that final almost which has been foremost on my mind. I’m posting this in October, the month dedicated to bringing awareness to pregnancy and infant loss – and social media is ensuring that memories of my own loss remain on the edges of my thoughts.

I can say from experience that anyone who has lost a cherished pregnancy, no matter how early, knows what it means to grieve the almost.

A parent is able to love – overwhelmingly – the baby whose proof of life lies only in the faintest of pink lines. A parent can see the child of her heart in the sprout-like form and nubby limbs of an 8-week fetus. A parent can feel the downy hair she never nuzzled; she can know the soft weight that never warmed her chest.

A parent who has lost a pregnancy has grieved – and will always grieve – the almost.

I’m writing this post not so much in the name of awareness, but in remembrance. Because I think the hardest part of pregnancy loss is the knowledge that we (or someone we loved) once carried within her the potential for a life that will not only never be lived, but which will never be known.

And so, this post is for all of the almost babies, the shadow children, who exist in the hearts of so many mothers and fathers.  Your presence is felt in a world you never saw, because you changed those who loved you without ever knowing you. We remember you. We miss you. We grieve for the world that will never know you.

In Honor of Our Teachers

This week is Teacher Appreciation Week, so it seems like a good time to put into words a post I have been writing in my head for weeks.

The state of our schools is on the minds of parents across the country. We hear about oppressive testing regimens, disinterested teachers, the much-maligned common core.  We hear far more complaints and criticism than gratitude and praise. More than that, we hear about a system that is broken, in which excellence is the exception to the rule.

***

On paper, our local school does not look promising. Our Great Schools rating has dropped from an eight to a four. Sixty percent of our students receive free or reduced price lunches – the highest percentage in our (wealthy) county. We have a significant population of parents whose first language is not English, so many of our students enter Kindergarten unable to understand their teachers.

If you look at just the numbers, ours is a school that some people would choose to avoid.

Some people would, but thankfully, we didn’t. Because numbers and metrics and the problems so many people like to discuss don’t tell the whole story.

***

For me, the story begins with our teachers.

When my daughter started Kindergarten last year, I was worried. She was diagnosed with Asperger’s when she was three. Since then, different doctors have agreed and disagreed with that diagnosis, but on one thing there is a clear consensus: she has some quirks. School, with its many transitions and social challenges had the potential of being really tough for her. Full-day Kindergarten looked, to me, like a minefield.

It wasn’t. My daughter’s teacher seemed to have an intuitive understanding of exactly what she needed to thrive. She made their daily routine clear and guided my daughter through transitions. She recognized the triggers that made my daughter especially anxious, and she made sure to work around them.

And she did all that while dealing with a class of 17 other children, who were all over the developmental spectrum. Some were struggling with the basics of reading, others were reading chapter books. Some came to school barely understanding English. Some had never been in a school environment, and several struggled with the restrictions of being in a classroom all day.   Her special understanding of my daughter wasn’t even special – because she had the same commitment to meeting the unique needs of each and every other student in her classroom.

And this teacher, as good as she is, is not an anomaly.

Back in December I had a meeting at our school to talk about my daughter’s handwriting, which was terrible.

Because her fine motor skill development was concerned, the meeting included her first grade teacher, the lead special education teacher, the school psychologist, an occupational therapist, and her principal.

I began the conversation discussing some of my daughter’s history, expecting to have to explain her quirks and how they affect her in the classroom. But I didn’t have to, because her teacher had such insight into her personality, her anxieties, and the way she learns that she was able to contribute more to the conversation than I was.

The special education teacher picked right up on what her teacher was saying, and put together a plan that was not only tailored exactly to my daughter’s needs, but which was creative and empowering.

Her principal looked over her handwriting samples, and understood immediately what our concerns were, adding in his own interpretations and recommendations.

Everyone in that room cared. They cared about my daughter as a person, not just as a student. They liked her. They wanted her to succeed in becoming her best self. It’s a gift beyond value — beyond any kind of measurement —  to have people like these in your child’s life.

***

Our teachers have an incredibly difficult job, especially at the elementary level. They aren’t just imparting knowledge. They are teaching our kids the basic skills that form the foundation of all the learning they will do in the future. And they are doing so for a classroom full of children with vastly different learning styles, family backgrounds, social statuses, and personalities.

My family is fortunate to be part of an exceptionally good school district and to be assigned to a school with excellent teachers and a strong community. I know how vastly unequal school districts across the nation are. I know that we are privileged.

But the story of our education system starts with our teachers. And if we want that system to be great we need give our teachers the support, the gratitude, and the respect they deserve.

So to all the teachers in my life: Thank You.

S

Our Baltimore

About 18 months ago, I ran the Baltimore Half Marathon.

As I ran through the streets of the city of my birth, I noticed something — the sidewalks of nearly every street, in nearly every neighborhood, were overflowing with people cheering us on.

There were white people, brown people, black people — people of all the races and ethnicities that make up the beautiful, diverse, charming city of Baltimore.

They were out there together, supporting all us crazy fools out there running, together. These people — the obviously homeless man who raised his brown-bagged bottle to us, the couple in front of a gentrified townhome who handed runners cups of Natty Boh, the thousands of people whose voices we heard but whose faces we didn’t see — they got us through that race, as much so as all the months of training that preceded.

I’m seeing the streets of Baltimore again today. The whole world is seeing those streets today. And what we are seeing is not a city united. We are seeing a city that is broken and bleeding. We see a city out of control, hemorrhaging with hate, lost to violence in protest of violence.

I don’t know how to reconcile those images. It seems impossible. But then again, unity and brokenness are equal parts of Baltimore’s soul.

I can say this, though — rampant, pointless violence for the sake of violence has no place in the heart of this city.

And those images on TV today do not define the people of Baltimore. They don’t define who they are today and they don’t define who they will be tomorrow. The people of Baltimore are so much better than this.

The Smart One and the Pretty One

A few months ago, I was shopping at the local dollar store with my three-year-old daughter. As we went through the store, row by row, my daughter asked for everything she set her eyes on, as she always does.

I usually let my kids pick out one “prize” when we go to the dollar store. I steer them to the craft section, where they can pick stickers, craft supplies, or books — stuff we use.

That day, the craft aisle was overflowing with tempting offerings. Some were on my approved prize list; others were not. We spent a long time negotiating over what  constitutes a prize, and after that we spent an even longer time going through the arduous decision-making process. After changing her mind about a zillion times, she finally settled on the stickers. My body sagged with relief; we had passed through the minefield unscathed.

So you can imagine how I felt when we hit the housewares aisle and my daughter experienced a profound case of buyer’s regret. She really, really, really, really wanted the glitter paint. She needed it. I told her we could trade the stickers for the glitter, but by that point she had grown so attached to the stickers that the only way I could possible satisfy her soul was to buy her both. I said no; she cried.

My daughter is really good with the crying thing. She lets the tears stream down her face, while aiming big, sad, disappointed eyes right at you. She says things like “you broke my heart when you said no, mommy” and “I will never be happy again.”

She was right in the middle of a pretty magnificent expression of pathos when an older man came up to me and said, “Aw, come on. Let her have it. She is too pretty to say no to.”

I’d like to say that I gave the guy a piece of my mind. But I didn’t. I am far too conflict-shy. I just gave him a fake smile and walked away.

There was a lot about that little episode that pissed me off. First of all, I really don’t like it when people contradict my parenting in front of my kids in a matter of discipline. You just don’t do that.

But what really got me going that day was the whole, “she is too pretty to say no to” part. I mean, my daughter is gorgeous, so I get where he was coming from. People are constantly commenting on how pretty she is. They especially rave over her bright blue eyes, which are pretty stunning. And I appreciate the compliments.  I really do. After all, I made her.

I mean, I get it but...

I get it…

But here is where it  gets problematic. First of all, I really don’t want my daughter to grow up thinking that it is her prettiness that gets her recognition and appreciation from people outside her family. I desperately don’t want her to feel like when she is out in the world she is defined by how she looks. Sometimes I think we grownups forget how watchful our children are, or how much they observe from life as it goes on around them. And even though she is only three, I can tell that this little girl is aware of how her looks influence other people.

Secondly, I have another daughter. Another gorgeous daughter with brown eyes you can get lost in. And all she ever hears when we are all out together is how beautiful her little sister is. People notice the little one because she is at the peak of her cuteness. But they always seem to miss the older one, the brown one, the one who is as pretty as she is smart.

This one.

This one.

The one who told me the other day that she is ugly. That her eyes are the color of poop and dirt. That her sister is prettier than she is. The six-year-old who is unhappy with the way she looks because “the pretty one” gets all the attention.

I know that, as much as we wish they didn’t, looks do matter in our society.  And I know that when people compliment little girls on how they look, they are doing it out of kindness, with only the best of intentions. I’ve done it myself often enough. There are times when it is biologically impossible not to rave over how cute a small child is. I also know there are times when people need to be told that they are pretty, or attractive. There are times when it is welcome and appropriate.

I just wish that when people engage with little girls out in the world, they notice more about them than just their pretty faces.

And I wish we had a better understanding of the subtle ways our words and actions shape a world that puts far too much value in the way women and girls look.

I also wish that when people see two little girls together, they notice them both.

Because they are both awesome!

Because they are both awesome!

Mom Brain

When you’re a 35-year-old operating on 4 hours of puke-scented sleep who has spent the day sitting sitting in front of the TV watching quality children’s programming with the weight of a hot, sick kid on your chest, your mind starts to go to strange places.

Places like this….

“Handy Manny is really good. He’s like the perfect contractor.”

“Seriously, the guy needs to come over here. I’ve got all kinds of things for him to fix… And I am KIND of married to Mr. Lopart… (Hah! That was a good one, Krista!)”

“Maybe he could even make me those built-in bookcases I’ve been wanting.”

“I mean, he really is that good… And no one ever seems to have to pay him. He’s right in my price range.”

“No one pays him because he gets all his stuff for free from that Kelly chick. She is SO into him.”

“I bet his Angie’s List reviews would be hilarious… People would be like, ‘either I was hallucinating or his tools were talking!'”

(Mental pause)

“Oh my God, did I just spend the last five minutes talking to myself about contracting with a cartoon character? I used to think about economic theory and social justice and stuff. I used to speak three languages. Oh dear Lord, what has become of me?”

“Sh*t… Oh sh*t… Where’s the puke bucket? Where did I put it?! Why can’t I find it? I knew it! I’m losing my mind.”

“Oh screw it, just puke in my coffee mug.”

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I bet he’s cute in real life…

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Just look at the way he handles that tool box.

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“Handsome” Manny to the rescue!!!

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It’s been 12 hours and she is finally asleep. All is well.

What Are 24 Years?

For the last 23 years, on January 6th, I have written. I’ve written journal entries, poems (some good, some terrible), letters, and, more recently, posts on social media.

I started writing when I passed that most challenging of milestones, the first anniversary of my mother’s death. Writing has always been my way of processing emotions that are bigger than I am, and back then, it was the only resource I had to absorb the excesses of my grief.

So I am writing again today, because I have to.  I’m not about to break a tradition that I have kept up for more than two-thirds of my lifetime. But also, even after 24 years, the grief of losing my mother is still bigger than I am, and I still struggle to process the meaning of what I lost so long ago.

* * *

When you lose someone you love early in life, you grow up measuring your time on earth based on how far removed you are from the loss of that person. In my early 20’s, I reached the point where I had spent half of my life without my mother. Two years ago, it was two-thirds of my life. And in 10 years, three-quarters of my life with have been lived without my mom.

And yet, after all this time, with so many more years under my belt without her than with her, I still miss her. I still miss her so much that it can be hard to understand how it is possible to long for someone who has been gone from your life several times longer than she was a part of it. It can be hard to understand how you can miss the presence of a person whose presence you barely remember.

But I do miss her. I do wish she was still a part of my life. My mom was amazing in so many ways. She loved generously, she fought bravely, and she was always there — even when she was hurting, even when she was dying. She never let cancer steal the life she was determined to provide for her family. Even in the end, when it was so clear that her body was ready to rest, she still held on until she just couldn’t hold on any longer.

She didn’t deserve to die, and we didn’t deserve to lose her. It breaks my heart that with every passing year I grow farther away from the time when I had her. It breaks my heart to think about how much I have forgotten and what I will never have.

Losing a parent at a very young age means that you spend the majority of your life as a person who has lost a part of herself. You become motherless — or fatherless, or sisterless, or brotherless — in your very definition of yourself. And the child that you were when you lost  that person becomes a permanent segment of your soul as well. It’s impossible to let go of the part of you that once had what you so deeply miss.

That’s not to say that you don’t grow up, or mature, or come to grips with your grief. It doesn’t mean you don’t experience or appreciate the joys and the richness your life brings you. You do grow up. I have grown up, and my life so far has been good. Really, really good.

But the 11-year-old girl who lost more than she thought she could ever regain is still with me. And the adult who has lived without for so long still grieves the emptiness.

Twenty-four years is everything and it is nothing.

* * *

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Mom loved giraffes.

She hated birds. (You would too if a seagull had once pooped on your head.)

She hated birds. (You would too if a seagull had once pooped on your head.)

And she adored her children.

And she adored her children.

The Red Bottle of Perfume: A Christmas Story

On Christmas day 1990 my mother was released from the hospital. Not because she was healed, but because there was nothing left to do. Her long battle against cancer had been fought. She was dying.

That day was the last full one we had with her – on December 26, she said her final goodbyes and allowed herself to lapse into a coma. Her body kept itself going for 11 more days, but she was no longer with us. On January 6 – the Feast of the Epiphany – shortly after our family had returned from Mass, she quietly passed away.

There is a picture from that last Christmas we had with her. It’s one that I can hardly bear to look at because it always makes me cry.  Partly because of how sick she looks in it – and she was so sick – but also because in this picture, she is holding a bright red bottle of cheap drugstore perfume. It was my present to her that year.

I still remember buying it from the drugstore down the road from my house. I picked it because I liked how shiny the bottle was; it had smoothly curved lines and looked, to an 11-year-old, very sophisticated.

On some level, I must have known it was the last gift I would ever give my mother. It was clear that she was ill beyond the point recovery. But I don’t remember ever thinking that way. In my mind, I was buying her a Christmas gift that she would get the chance to use.

In a sense, this is one of the most heart-breaking memories of my life, thinking about how incapable I was of understanding the fact that she was dying. It is painful to relive the disbelief – shock, almost– that you feel in the moment of the death of a loved one. It seems like death, even when you have watched it slowly approach, is rarely easy to accept. Certainly, at 11 going on 12, I couldn’t accept it. I held on to hope all the way through to the very last moment.

***

On the other hand, what a miracle. What a miracle that spark of hope was.

This ability to hang on to hope, to grasp tightly to our chests the belief that all will be well, through even the most hopeless of situations is one of the best aspects of our humanity.

It’s also part of what makes the celebration of Christmas so enduring, and so endearing. The human spirit gravitates toward hope, and hope is what was born on what we remember as Christmas night.

In our modern Christian dialogue, we refer to Christmas as the birth of a Savior. But that isn’t what we see in the nativity as we know it. In our nativity story, a baby is born in the lowliest of circumstances to a homeless couple with no political, economic, or social standing. This baby has come to us through miraculous means, but he enters the world as powerless as a person can possibly be.

And yet, in this baby, a latent potential is already recognized. In him, the stories tell us, the hope of a nation rests. In him, the prospect of salvation lives.

***

Hope is the essence of our Christmas story. It is what allows us to believe that in a helpless

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The One Thing I Can Say

If you are currently alive with at least a moderate amount of functioning brain cells and you have access to media of any kind, you are aware that there is a lot of injustice in our world.

There is injustice in Syria and in Iraq and in the Holy Land. There is injustice in every community where people live without food or shelter and in every city where violence rules the streets. There is injustice in our work places and in our schools an in our homes. There is injustice in our justice system.

There is injustice everywhere, all the time. But I think we go through cycles when the injustice is quiet, there but unobtrusive, demanding our attention only periodically. Or perhaps it is more accurate to say that we go through phases of contentment with our world, when we are able to believe that, on balance, there is more justice than injustice. To be honest, I don’t think we could survive any other way.

But then something, some instance of injustice impossible to explain away, bursts through our complacency, and the injustice that is always there suddenly dominates the landscape.

That’s where we are right now. Or at least, that is where I am right now. Because I can’t seem to stop thinking about how unjust our society is.

I’ve been reading a lot of articles and blog posts about what is happening in our own country, on a street in Missouri, on a sidewalk in New York, in a park in Ohio – in every part of our country where people’s rights seem to be determined more by the color of their skin than by their inherent humanity. I have been reading about racism and about poverty and crime. I’ve read facts and opinions, transcripts and OpEds. And I’ve read the comments. (I should never read the comments.)

Every time I read something I get angry and upset. In fact, I get overwhelmed. And I feel like I need to write about what I am thinking, because there are so many thoughts racing through my mind and writing has always helped me to make sense of things that seem incomprehensible.

But when I try to write my thoughts out, I can’t. There just isn’t enough of me left at the end of the day to deal with the magnitude of what is happening in our country and everywhere else in the world. I feel so small, so inadequate in the face of our problems. So I walk away from my computer in frustration, with nothing to say.

But I need to write something. I can’t stay silent. If the magnitude of injustice is so great that it leaves me feeling like I don’t have the words to talk about it, then it is far too great for me to bury in the silence of my heart.

* * *

So I will say one thing, the only thing I feel like I can say: that we, individually and as a society, need to find our compassion.

We need to remind ourselves that there is dignity inherent to all human life. And we need to remember that our own dignity — and the dignity of those who are like us — never trumps the dignity of anyone else. Not ever.

Above all, we need to care. The intrinsic worth of people who are different from us has to matter.

A wise man once asked his followers to love strangers as well as their neighbors, and to love their neighbors as well as they loved themselves. In America today, this advice is worth taking.

* * *

compassion